Drawing as a Facilitator of Critical Data Discourse: Reflecting on Problems with Digital Health Data Through Expressive Visualizations of the Unseen Body Landscape

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dc.contributor.authorKuksenok, Kit
dc.contributor.authorDe Maeyer, Christel
dc.contributor.authorLee, Minha
dc.date.accessioned2023-08-29T12:09:27Z
dc.date.available2023-08-29T12:09:27Z
dc.date.issued2023
dc.description.abstractIn a 1.5-hour workshop, we used drawing and self-reflection prompts to facilitate a value-driven discussion of personal and institutional data practices. Activities included mark-making in time with one's heartbeat, creating an inventory of one's personal data, and creating a qualitative personal health visualization. This article details the workshop structure and exercises and includes a summary of the discussion, which constructively encompassed both the empowering and the uncomfortable aspects of digital health data collection in a constructive manner. The workshop's design used the format of hands-on, expressive drawing activities to enable participants to achieve depth and breadth in a relatively short discussion about personal health, data autonomy, institutional trust, and consent. Critical discourse about data, especially health data, is a valuable experience for every person whose health data has been or is being collected; and approaches that take personal data as a starting point can support the practice of digital/data sovereignty more broadly.en
dc.description.sponsorshipThis work has been funded by the Federal Ministry of Education and Research of Germany (BMBF) (grant no.: 16DII111, 16DII112, 16DII113, 16DII114, 16DII115, 16DII116, 16DII117 – „Deutsches Internet-Institut“)
dc.identifier.citationKuksenok, K., De Maeyer, C., & Lee, M. (2023). Drawing as a Facilitator of Critical Data Discourse: Reflecting on Problems with Digital Health Data Through Expressive Visualizations of the Unseen Body Landscape. Proceedings of the Weizenbaum Conference 2022: Practicing Sovereignty, 131–141. https://doi.org/10.34669/WI.CP/4.13
dc.identifier.doihttps://doi.org/10.34669/wi.cp/4.13
dc.identifier.eissn2510-7666
dc.identifier.urihttps://www.weizenbaum-library.de/handle/id/65
dc.language.isoeng
dc.publisherWeizenbaum Institute
dc.relation.ispartofhttps://doi.org/10.34669/WI.CP/4
dc.relation.ispartofseriesWeizenbaum Conference Proceedings
dc.rightsopen access
dc.rights.urihttps://creativecommons.org/licenses/by/4.0/
dc.subjectTechnology (Applied sciences)en
dc.subjectTechnology Assessmenten
dc.subjecthealth care delivery systemen
dc.subjectvisualizationen
dc.subjectdata acquisitionen
dc.subjectdata protectionen
dc.subjectTechnik, Technologiede
dc.subjectdigital healthde
dc.subjectdata visualizationde
dc.subjectdata ethicsde
dc.subjectself-trackingde
dc.subjectTechnikfolgenabschätzungde
dc.subjectGesundheitswesende
dc.subjectVisualisierungde
dc.subjectDatenerfassungde
dc.subjectDatenschutzde
dc.subject.ddc600 Technik
dc.subject.ddc300 Sozialwissenschaften
dc.titleDrawing as a Facilitator of Critical Data Discourse: Reflecting on Problems with Digital Health Data Through Expressive Visualizations of the Unseen Body Landscape
dc.typeConferencePaper
dc.type.statuspublishedVersion
dcmi.typeText
dcterms.bibliographicCitation.booktitleProceedings of the Weizenbaum Conference 2022
dcterms.bibliographicCitation.originalpublisherplaceBerlin
dcterms.bibliographicCitation.pageend141
dcterms.bibliographicCitation.pagestart131
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Proceedings of the Weizenbaum Conference 2022: Practicing Sovereignty