Proceedings of the Weizenbaum Conference 2022: Practicing Sovereignty

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Auflistung Proceedings of the Weizenbaum Conference 2022: Practicing Sovereignty nach Autor:in "Lee, Minha"

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    Digital Twins in Healthcare for Citizens
    (Weizenbaum Institute, 2023) De Maeyer, Christel; Lee, Minha
    Digital twins are gaining attention in healthcare, especially in fields like hospital management, simulating surgeries, or providing personalized health. As digital replicas based on users' data, digital twins can inform citizens in-depth about their lifestyle, medical data, and biomedical data. Hence, there is the assumption that digital twins could facilitate preventative healthcare at home, bringing healthcare closer to citizens, yet there are underexamined ethical concerns. In this paper, we explore the ethics of digital twins based on citizens' perspectives on digital twins in healthcare via recent literature and research. Although digital twins have great potential, citizens have concerns about surveillance, data ownership, data accuracy, and personal and collective agency.
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    Drawing as a Facilitator of Critical Data Discourse: Reflecting on Problems with Digital Health Data Through Expressive Visualizations of the Unseen Body Landscape
    (Weizenbaum Institute, 2023) Kuksenok, Kit; De Maeyer, Christel; Lee, Minha
    In a 1.5-hour workshop, we used drawing and self-reflection prompts to facilitate a value-driven discussion of personal and institutional data practices. Activities included mark-making in time with one's heartbeat, creating an inventory of one's personal data, and creating a qualitative personal health visualization. This article details the workshop structure and exercises and includes a summary of the discussion, which constructively encompassed both the empowering and the uncomfortable aspects of digital health data collection in a constructive manner. The workshop's design used the format of hands-on, expressive drawing activities to enable participants to achieve depth and breadth in a relatively short discussion about personal health, data autonomy, institutional trust, and consent. Critical discourse about data, especially health data, is a valuable experience for every person whose health data has been or is being collected; and approaches that take personal data as a starting point can support the practice of digital/data sovereignty more broadly.